The Importance of Unified Medical Records in a Long-Term Multidisciplinary Rehabilitation of CP Children
Keywords:
cerebral palsy, medical records, functional scale, International Classification of Functioning, Disability and Health (ICF)Abstract
Introduction: It is very important to use unified rehabilitation forms and documents in multidisciplinary and long-term process of rehabilitation of children with cerebral palsy (CP).
Aim of the paper: The paper presents a scheme of documentation for children with CP which is necessary for members of a rehabilitation team. This document consists of two parts. The first part is completed by a physiatrist - conjoint rehabilitation form consisting of information necessary for all specialists working in a team. The second part contains several documents and is filled by every member of the rehabilitation team. The authors propose a structured way of documenting the patient’s condition and his/her needs for rehabilitation according to ICF.
Conclusion: According to current standards in dealing with CP children, members of the therapeutic team should employ consistent documentation in all rehabilitation centers while planning multidisciplinary rehabilitation.
Downloads
References
Hoon A, Johnsston M, Cerebral Palsy. In: Asbury A., editor. Diseases of nervous system, Clinical neuroscience and therapeutic principles. Cambridge:Cambridge University Press;2002.p.568-80
Bax M, Goldstein M, Rosenbaum P i wsp.: Proposed definition and classification of cerebral palsy.April 2005, Dev. Med. Child Neur. 2005;47, 571-576
AACPDM The definition and classification of cerebral palsy. Dev Med Child Neurol 2007;49(109):1-44.
Cans C, Dolk H, Plat MJ,Colver A, Prasausskiene A, Krageloh- Mann I, Recomandations from the SCPE collaborative group for defining and classifying cerebral palsy. Dev Med Child Neurol Suppl 2007;109:35-8
Ashwal S, Russman BS, Blasco PA, Miller G, Sandler A, Shevell M et al. Practice parameter: diagnostic assessment of the child with cerebral palsy: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. Neurology 2004;62(6):851-63
Hart AR, Whitby EW, Griffithhs PDF, Smith MF.Magnetic resonance imaging and developmental outcome following preterm birth: review of current evidence. Dev Med Child Neurol 2008;50(9):655-63
Petruch U, Weber P, Krageloh- Mann I. The reference and trainings manual of the SCPM (Surveillance of Cerebral Palsy in Europe) Neuropediatrics 2004;63
Gainsborough M, Surman G, Maestri G, Colver A, Cans C, Validity and reliability of the guidelines of the surveillance of cerebral palsy in Europe for the classificatoin of cerebral palsy. Dev Med Child Neurol 2008;50 (11):828-31
Kułak W, Sobaniec W. Mózgowe porażenie dziecięce- współczesne poglądy na etiopatogenezę, diagnostykę i leczenie. Klinika Pediatryczna, Neurologia Wieku Dziecięcego 2006;14(4):442-448. 6.Koman LA, Smith BP, Shilt JS. Cerebral Palsy. Lancet 2004;363(9421):1619-31
Rosenbaum P, Stewart D. The World Health Organization International Classification of Functioning, Disability, and Health: a model to guide clinical thinking, practice and research in the field of cerebral palsy. Semin Pediatr Neurol 2004;11(1):5-10
Wright FV, Rosenbaum PL, Goldsmith CH, Law M, Fehlings DL. How do changes in body functions and structures, activity, and participation relate in children with cerebral palsy? Dev Med Child Neurol 2008;50(4):283-9.
Paszko-Patej G, Kułak W, Okurowska- Zawada B, Sienkiewicz D. Problemy diagnostyczne we wczesnym rozpoznaniu mózgowego porażenia dziecięcego u dzieci w pierwszym roku życia. Klin. Pediatr. 2010;18(1):26-29
Sanger TD, Delgado MR, Gaebler-Spira D, Halleti M, Mink JW. Classification and definition of disorders causing hypertonia in childhood. Pediatrics 2003;111(1):89-97.
Sanger TD. Pathophysiology of pediatric movement disorders. J Child Neurol 2003;18 (Suppl. 1):S9-24
Michałowicz R. Mózgowe porażenie dziecięce. PZWL 1993
Depczyńska B, Jóżwiak M, Dudziński W. Niepełnosprawność intelektualna a stan funkcjonalny w aspekcie umiejetności motorycznych u dzieci z mózgowym porażeniem dziecięcym. Fizjoter. Pol 2009;9(2):122-132
Gajewska E, Sobieska M. Rozwój funkcjonalny dzieci z mózgowym porażeniem dziecięcym w odniesieniu do stopnia upośledzenia umysłowego. Neurol. Dziec. 2008;17(34):37-41)
Sobaniec W, Oktapowicz D, Okurowska- Zawada B. Dyzartryczne zaburzenia mowy w korelacji z obrazem klinicznym mózgowego porażenia dziecięcego. Neurol. Dziec. 2008;17(34):29-35.
Buonaguro V, Scelsa B, Curci D, Monforte S, Iuorno T, Motta F. Epilepsy and intrathecal baclofen therapy in children with cerebral palsy. Peditr Neurol 2005;33(2):110-3
Gajewska E, Mojs E, Samborski W. Objawy towarzyszące uszkodzeniu mózgu u dzieci. Pieleg. Pol. 2007 (1): 26-28.)
Gajewska E. Nowe definicje i skale funkcjonalne stosowane w mózgowym porażeniu dziecięcym. Neurol. Dziec. 2009;18(35):67-72.
Sienkiewicz D, Kułak W, Buzalska A, Okurowska- Zawada B, Paszko- Patej G. Skale funkcjonalne stosowane u dzieci z mózgowym porażeniu dziecięcym. Neurol. Dziec. 2009;18(35):73-77
Gajewska E. Narzędzia diagnostyczne do oceny wczesnego rozwoju motorycznego stosowane w fizjoterapii dziecięcej. Neurol. Dziec. 2011;20(40):53-57
Palisano RJ, Rosenbaum PL, Walter SD et all. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol 1997;39(4):214-23
Rosenbaum PL, Walter SD, Hanna SE, Palisano RJ, Russell DJ, Raina P, et al. Prognosis for gross motor function in cerebral palsy: creation of motor development curves. Jama 2002;288(11):1357-63
Morris C, Kurinczuk JJ, Fitzpatrick R, Rosenbaum PL. Reliability of the manual ability classification system for children with cerebral palsy. Dev Med Child Neurol 2007;49(12):259-64
Eliasson AC, Krumlinde-Sundhol ML, Rosblad B, Beckung E, Arner M, Ohrvall AM at al. The manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol 2006;48(7):549-54
Gorter JW, Rosenbaum PL, Hanna SE et al. Limb distribution, motor impairment in, and functional classification of cerebral palsy. Dev Med Child Neurol 2004;46(7):461-7
Himmelmann K, Beckung E, Hagberg G, Uverbrant P. Gross and fine motor function and accompanying impairments in cerebral palsy. Dev Med Child Neurol 2006;48(6):417-23
Gajewska E, Sobieska M, Samborski W. System klasyfikacji zdolności manualnych dzieci z mózgowym porażeniem dziecięcym. Chir. Narz. Ruchu i Ort. Polska 2006;71(4):317-319.)
Jóźwiak M. Mózgowe porażenie dziecięce w rodzinie i społeczeństwie – akceptacja, integracja, izolacja. Fam. Med. Prim. Care Rev. 2009;11(3):654-658.
Davids JR, Rowan F, Davis RB. Indications for orthoses to improve gait in children with cerebral palsy. J Am Acad Orthop Surg 2007;15(3):178-88
Corry IS, Cosgrove AP, Duffy CM, McNeill S, Taylor TC, Graham HK.Botulin toxin a compared with stretching casts in the treatment of spastic equinus: a randomised prospective trial. J. Pediatr. Orthop. 1998;18:304-311
Heinen F et al., The update european Consesus 2009 on the use of Botulinum toxin for children with cerebral palsy, European Journal of Pediatric Neurology (2009), doi:10.1016/ejpn.2009.09.005
Lowing K, bexelius A, Brogren Carlberg E. Activity focused and goal directed therapy for children with cerebral palsy- Do goals make a difference? Disab Rehabil 209:1-9.
Cusick A, McIntyre S, Nowak I, Iannin N, Lowe K. A comparison of goal attainment scaling and the Canadian Occupational Performance Measure for pediatric rehabilitation research. Pediatr Rehabil 206;9(2):149-57
Palisano RJ. Validity of goal attainment scaling in infants with motor delays. Phys Ther 1993;73(10):651-8
Steenbeek D, Ketelaar M, Galama K, Gorter JW. Goal attainment scaling in paediatric rehabilitation: a critical review of the literature. Dev Med Child Neurol 2007;49(7):550-6.).
Czubak J, Pietrzak Sz. Problemy ortopedyczne i rehabilitacyjne dziecka z mózgowym porażeniem dziecięcym od okresu noworodkowego do wieku dorosłego. Stand. Med. Pediatr. 2010;7(5/6):903-907
Heinen F et al., The update European Consensus 2009 on the use of Botulinum toxin for children with cerebral palsy, European Journal of Paediatric Neurology (2009)), doi:10.1016/ejpn.2009.09.005
Lowe K, Nowak I, Cusick A. Low- does/ high- concentration localized Botulinum toxin A improves upper limb movement and function in children with hemiplegic cerebral palsy. Dev Med Child Neurol 2006;48(3):170-5
Hagglund G, Andersson S, Duppe H, Pedertsen HI, Nordmark E, Westbom I. Prevention of severe contractures might replace mltilevel surgery in cerebral palsy: results of a population- based health care programme and new techniques to reduce spasticity. J Pediatr Orthop B 2005;14(4):268-7
Molenaers G, Desloovre K, Fabry G, De Cock P. The effects of quantitative gait assessment and Botulinum toxin a on musculoskeletal surgery in children with cerebral palsy. J Bone Joint Surg Am 2006;48(6):533-9
.Allington NJ, Leroy N, Doneux C. Ankle joint range of motion measurements in spastic cerebral palsy children: intraobserver and interobserver reliability and reproducibility of gonometry and visual estimation. J Pediatr Orthop B 2002;11(3):236-9.
McDowell BC, Hewitt V, Nurse A, Weston T, Baker R. The variability of goniometric measurements in ambulatory children with spastic cerebral palsy. Gait Posture 2000;12(2):114-21.)
Matyja M, Gogola A, Świąder J. Ocena jakości ruchów selektywnych u dzieci z mózgowym porażeniem dziecięcym. Annales Universitatis Mariae Curie-Skłodowska Lublin-Polonia, vol.LX, Suppl.XVI,311 Sectio D 2005.
Scholtes VA, Becher JG, Beelen A, Lankhorst GJ. Clinical assessment of spasticity in children with cerebral palsy: a critical review of available instruments. Dev Med Child Neurol 2006;48(1):64-73.
Boyd RN, Graham HK. Objective measurement of clinical findings in the use of Botulinum toxin type A for management of children with cerebral palsy. European Journal of Neurology 1999;6(Suppl.4)23-35.
Gage JR, Novacheck TF. An update on treatment of gait problems in cerebral palsy. J. Pediatr. Orthop. B. 2001;10, 265-274.
Wren TA, Gorton GE III, Ounpuu S, Tucker CA. Efficacy of clinical gait analysis: A systematic review. Gait Posture, 2011; 34:501-503.
Gage JR. The role of gait analysis in the treatment of cerebral palsy. J. Pediatr. Orthop. 1994; 14:701-702.
Cook RE, Schneider I, Hazlewood ME, Hillman SJ, Robb JE. Gait analysis alters decision- making in cerebral palsy. J. Pediatr. Orthop. 2003; 23:292-295.
Winters TFJr, Gage JR, Hicks R. Gait patterns in spastic hemiplegia in children and young adults. J. Bone Joint Surg. Am., 1987; 69:437-441.
Mackey AH, Lobb GL, Walt SE, Stott NS. Reliability and validity of the Observational Gait Scale in children with spastic diplegia. Dev Med Child Neurol. 2003;45:4-11.
Rodda J, Graham HK. Classification of gait patterns in spastic hemiplegia and spastic diplegia: a basis for a management algorithm. Eur. J. Neurol. 2001;8 (supl.5):98-108.
Engsberg JR, Tucker C, Ounpuu S, Wren TA, Sisto SA, Kaufman KR. Gait and clinical movement analysis research priorites:2007 update from the research committee of Gait and Clinical movement Analysis Society. Gait Posture 2009;29:169-171.
Becher JG. Pediatric Rehabilitation in Children with Cerebral Palsy: General Management Classification of Motor Disorders. JPO 2002;14:143-149.
Czupryna K, Nowotny J, Nowotny- Czupryna O, Domagalska M. . Ocena chodu dzieci z mózgowym porażeniem dziecięcym jako podstawa programowania rehabilitacji i kontroli jej wyników. Reh. Med. 2006; 10(1):29-40
Manikowska F, Jóźwiak M. Analiza przydatności skali Gross Motor Function Measure w określeniu efektów funkcjonalnych leczenia ortopedycznego dzieci z postacią spastyczną mózgowego porażenia dziecięcego: paca doktorska. Akademia Medyczna im. Karola Marcinkowskiego Katedra i Klinika Ortopedii i Traumatologii Dziecięcej w Poznaniu 2006;104,(26)
Wallen M, O’Flaherty SJ, Waugh MC.Functional outcomes of intamusculars Botulinum toxin type a and occupational therapy in the upper limbs of children with cerebral palsy: a ranomized controlled trial. Arch Phys Med Rehabil 2007;88(1):1-10 skale House i Zancolli
Krumlinde-Sundholm L,Holmefur M,Kottorp A, Eliasson AC. The Assisting Hand Assessement: current evidence of validity, reliability and responsiveness to change. Dev Med.Child Neurol 2007;49(4):259-64
Feldmann AB,Haley SM,CorryelJ.Concurrent and construct validity of the Pediatric Evaluation of Disability Inventory. Phys.Therapy 1990;70 (10);602-10
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2013 Medical Journal of the Rzeszow University and the National Medicines Institute, Warsaw
This work is licensed under a Creative Commons Attribution 4.0 International License.
Our open access policy is in accordance with the Budapest Open Access Initiative (BOAI) definition: this means that articles have free availability on the public Internet, permitting any users to read, download, copy, distribute, print, search, or link to the full texts of these articles, crawl them for indexing, pass them as data to software, or use them for any other lawful purpose, without financial, legal, or technical barriers other than those inseparable from having access to the Internet itself.
All articles are published with free open access under the CC-BY Creative Commons attribution license (the current version is CC-BY, version 4.0). If you submit your paper for publication by the Eur J Clin Exp Med, you agree to have the CC-BY license applied to your work. Under this Open Access license, you, as the author, agree that anyone may download and read the paper for free. In addition, the article may be reused and quoted provided that the original published version is cited. This facilitates freedom in re-use and also ensures that Eur J Clin Exp Med content can be mined without barriers for the research needs.
