Predictors of family burden in parents of children with intellectual disabilities and their children’s sexual development characteristics
DOI:
https://doi.org/10.15584/ejcem.2025.1.13Keywords:
child, family burden, intellectual disability, logistic models, sexual developmentAbstract
Introduction and aim. Although the existing literature includes both quantitative and qualitative studies that examine the sexual characteristics of children with intellectual disabilities and the challenges they face, these studies have not addressed the impact of these characteristics on the burden of the family. Our objective was to examine the predictors of sexual development of family burden among parents of children with intellectual disability in this cross-sectional study.
Material and methods. We collected data from 815 parents with children aged 10–18 years with intellectual disabilities between May 2021 and March 2022. Data collection tools were ‘Descriptive Characteristics Form”, “Family Burden Rating Scale for families with Mentally Handicapped Children” and ‘Sexual Development Characteristics scale of Adolescents with Intellectual Disability”. A logistic regression analysis was performed.
Results. The predictive model for the burden of the family explained 60% of the variance in this sample of parents (p<0.001). The sexual predictors with the strongest effect on the model were previous sexual development education (β=0.74; SE=0.16, p≤0.001), followed by sexual harassment (β=-0.56, SE=0.26, p≤0.001).
Conclusion. Education on sexual development in children with intellectual disability can facilitate management of challenges in adolescence.
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Balcı S, Kızıl H, Savaşer S, Dur Ş, Mutlu B. Determining the burdens and difficulties faced by families with intellectually disabled children. J Psychiatr Nurs. 2019;10(2):124-130. doi: 10.14744/phd.2018.05657
Zabun Sever M, Taş Arslan F. Family burden and anger level among mothers of children with intellectual disability. Balıkesir Heal Sci J. 2021;10(3):391-397. doi: 10.53424/balikesirsbd.987835
Panicker AS, Ramesh S. Psychological status and coping styles of caregivers of individuals with intellectual disability and psychiatric illness. J Appl Res Intellect Disabil. 2019;32(1):1-14. doi: 10.1111/jar.12496
Strang JF, Kenworthy L, Daniolos P, Case L, Wills MC, Wallace GL. Depression and anxiety symptoms in children and adolescents with autism spectrum disorders without intellectual disability. Res Autism Spectr Disord. 2012;6(1):406-412. doi: 10.1016/j.rasd.2011.06.015.
Helland WA, Helland T. Emotional and behavioural needs in children with specific language impairment and in children with autism spectrum disorder: The importance of pragmatic language impairment. Res Dev Disabil. 2017;70:33-39. doi: 10.1016/j.ridd.2017.08.009
Tekinarslan İÇ, Eratay E. Investigation of parental behaviour during the period of compliance with adolescents with mental deficiency. E-Journal New World Sci Acad. 2013;8(3):363-374. doi: 10.12739/NWSA.2013.8.3.1C0592
Miranda A, Mira A, Berenguer C, Rosello B, Baixauli I. Parenting stress in mothers of children with autism without intellectual disability. Mediation of behavioral problems and coping strategies. Front Psychol. 2019;10:1-12. doi: 10.3389/fpsyg.2019.00464
Frank K, Sandman L. Supporting parents as sexuality educators for individuals with intellectual disability: The development of the home B.A.S.E curriculum. Sex Disabil. 2019;37(3):329-337. doi: 10.1007/s11195-019-09582-7
Clatos K, Asare M. Sexuality Education Intervention for Parents of Children with Disabilities: A Pilot Training Program. Am J Health Stud. 2016;31(3):151-162.
Schaafsma D, Kok G, Stoffelen JMT, Curfs LMG. People with intellectual disabilities talk about sexuality: implications for the development of sex education. Sex Disabil. 2017;35(1):21-38. doi: 10.1007/s11195-016-9466-4
Wilbur J, Kayastha S, Mahon T, et al. Qualitative study exploring the barriers to menstrual hygiene management faced by adolescents and young people with a disability, and their carers in the Kavrepalanchok district, Nepal. BMC Public Health. 2021;21(1):1-15. doi: 10.1186/s12889-021-10439-y
Kürtüncü M, Kurt A. Sexual education and development in children with intellectual disability: Mothers’ opinions. Sex Disabil. 2020;38:455-468. doi: 10.1007/s11195-020-09638-z
Sravanti L, Arul Jayendra Pradeep V. “What, Why, and How” model of parent-mediated sexuality education for children with intellectual disability: An illustrated account. J Psychosexual Heal. 2021;3(2):117-123. doi: 10.1177/26318318211017685
Sinclair J, Unruh D, Lindstrom L, Scanlon D. Barriers to sexuality for individuals with intellectual and developmental disabilities: A literature review. Educ Train Autism Dev Disabil. 2015;50(1):3-16.
Kahonde CK, McKenzie J, Wilson NJ. Discourse of needs versus discourse of rights: family caregivers responding to the sexuality of young South African adults with intellectual disability. Cult Heal Sex. 2019;21(3):278-292. doi: 10.1080/13691058.2018.1465202
Kök G, Akyüz A. Evaluation of effectiveness of parent health education about the sexual developments of adolescents with intellectual disabilities. Sex Disabil. 2015;32(2):157–174. doi: 10.1007/s11195-015-9400-1
Gürol A, Polat S, Oran T. Views of mothers having children with intellectual disability regarding sexual education: A qualitative study. Sex Disabil. 2014;32(2):123-133. doi: 10.1007/s11195-014-9338-8
Çelik Ö. The opinions of intellectual disabled childrens’ mothers about the sexuality of their children. Turkish Stud. 2017;12(18):211-234. doi: dx.doi.org/10.7827/TurkishStudies.12106
Lavrakas PJ. Convenience Sampling. In: Encyclopedia of Survey Research Methods. Vols. 1-0. CA: Sage Publications; 2008. doi: 10.4135/9781412963947
Gürbüz S, Eratay E. Development of sexual development characteristics scale of adolescents with intellectual disability. J Bolu Abant İzzet Baysal Uni Fac Educ 2020;20(2):1206-1221.
Yıldırım Sarı H, Başbakkal Z. Developing “A Family Burden Assessment Scale” for the Families of Children with Intellectual Disability. Anatol J Nurs Heal Sci. 2008;11(3):86–95.
Blanca MJ, Arnau J, López-Montiel D, Bono R, Bendayan R. Skewness and kurtosis in real data samples. Methodology. 2013;9(2):78-84. doi: 10.1027/1614-2241/a000057
Turan Gürhopur FD, İşler Dalgıç A. Family burden among parents of children with intellectual disability. J Psychiatr Nurs. 2017;8(1):9-16. doi: 10.14744/phd.2017.87609
Karlıoğlu A, Yıldırım Sarı H. The relationship between parental self-efficacy, perceived social support and family burden on fathers of children with intellectual disability. J Educ Res Nurs. 2019;16(2):112-118. doi: 10.5222/KUHEAD.2019.112
Sivrikaya T, Tekinarslan İÇ. Stress, social support and family burden in mothers of children with intellectual disabilities. J Ankara Univ Fac Educ Sci Spec Educ. 2013;14(2):17-29. doi: 10.1501/ozlegt_0000000182
Üstüner Top F. Determination of sexual developmental characteristics of adolescents with intellectual disabilities. J Intellect Disabil. 2022;26(3):672-686. doi: 10.1177/17446295211016180
Kırbaş ZÖ, Odabaşı Aktaş E. Sexual developmental characteristics of intellectually disabled adolescents in Türkiye: A cross-sectional analysis. Int J Disabil Sport Heal Sci. 2024;7(April):825-833. doi: 10.33438/ijdshs.1472674
Nair S, Indiramma V, Girimaji SC, Pillai RR. Sexuality in adolescents with intellectual disability: Felt needs of parents. Indian J Psychiatr Soc Work. 2017;8(2):28-38. doi: 10.29120/ıjpsw.2017.v8.i2.42
Öncü E, Aktaş G, Vayısoğlu SK, Karakuş E. Sexual development in adolescents with intellectual disabilities and difficulties experienced by the parents: A descriptive study. Mersin Univ J Heal Sci. 2019;12(3):413-425. doi: 10.26559/mersinsbd.553739
Küçük S, Platin N, Erdem E. Increasing awareness of protection from sexual abuse in children with mild intellectual disabilities: An education study. Appl Nurs Res. 2017;38:153-158. doi: 10.1016/j.apnr.2017.10.016
Maria DS, Markham C, Mullen PD, Bluethmann S. Parent-based adolescent sexual health interventions and effect on communication outcomes: A systematic review and meta- analyses. Perspect Sex Reprod Health. 2015;47(1):37-50. doi: 10.1363/47e2415
Chavan BS, Ahmad W, Arun P, et al. Sexuality among adolescents and young adults with intellectual disability: Knowledge, attitude, and practices. J Psychosexual Heal. 2021;3(2):140-145. doi: 10.1177/26318318211021544
Yıldız G, Cavkaytar A. Effectiveness of a sexual education program for mothers of young adults with intellectual disabilities on mothers’ attitudes toward sexual education and the perception of social support. Sex Disabil Disabil. 2017;35(1):3-19. doi: 10.1007/s11195-016-9465-5
Kurt A, Kürtüncü M. The effectiveness of sexual health and development education given to children with intellectual disabilities: A randomized controlled study. J Pediatr Nurs. 2024;75:e49-e57. doi: 10.1016/j.pedn.2023.12.027
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