Turkish cross-cultural adaptation of Pediatric Transition Experience Measure
DOI:
https://doi.org/10.15584/ejcem.2024.2.12Keywords:
measure, parents, pediatric transition, reliability, validityAbstract
Introduction and aim. The period immediately after leaving the hospital is known as the transition home, which presents a critical time for parents to take on all the responsibilities and care of a child without the support of the hospital environment. The purpose of this study is to culturally adapt the Pediatric Transition Experience Measure (P-TEM) instrument into Turkish and test its validity and reliability.
Material and methods. We conducted this methodological study with parents of children who were discharged from the hospital between May 2021 and May 2022. We evaluated linguistic, content, construct, convergent validity, and internal consistency.
Results. The P-TEM exhibited a two-factor structure and accounted for 65% of the overall variability. The internal consistency reliability for the transition preparation and transition support subdimensions was 0.779 and 0.793, respectively, while the total measure had a reliability of 0.831. The item-total correlations for the P-TEM ranged from 0.493 to 0.671. Parents who received the highest P-TEM scores experienced a 5.1-point improvement (95% confidence interval: 1.7 to 8.6) in their satisfaction with healthcare services, which was greater than that of parents who reported lower P-TEM scores.
Conclusion. It is worth noting that the P-TEM has been validated and has high reliability in Türkiye.
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References
De Jesus-Rojas W, Mosquera RA, Samuels C, et al. The effect of comprehensive medical care on the long-term outcomes of children discharged from the NICU with tracheostomy. Open Respir Med J. 2018;12(1):39-49. doi: 10.2174/1874306401812010039
Nemetchek B, English L, Kissoon N, et al. Paediatric postdischarge mortality in developing countries: A systematic review. BMJ Open. 2018;8(12):023445. doi: 10.1136/bmjopen-2018-023445
Desai AD, Popalisky J, Simon TD, Mangione-Smith RM. The effectiveness of family-centered transition processes from hospital settings to home: a review of the literature. Hosp Pediatr. 2015;5(4):219-231. doi: 10.1542/hpeds.2014-0097
Eren SG, Şahin ÖÖ. Evaluate of anxiety status of children hospitalized for acute or chronic diseases and their mothers. J Infant, Child Adolesc Heal. 2023;1(1):1-11. doi: 10.5281/zenodo.7871132
Antolick MM, Looman WS, Cady RG, Kubiatowicz K. Identifying and communicating postdischarge goals for hospitalized children with medical complexity: A process improvement pilot in a specialty pediatric setting. J Pediatr Heal Care. 2020;34(2):90-98. doi: 10.1016/j.pedhc.2019.07.006
Porter KA, O’Neill C, Drake E, et al. Caregivers’ assessment of meaningful and relevant clinical outcome assessments for Sanfilippo syndrome. J Patient-Reported Outcomes. 2022;6(1):40. doi: 10.1186/s41687-022-00447-w
Martens A, DeLucia M, Leyenaar JAK, Mallory LA. Foster caregiver experience of pediatric hospital-to-home transitions: A qualitative analysis. Acad Pediatr. 2018;18(8):928-934. doi: 10.1016/j.acap.2018.06.007
Desai AD, Jacob-Files EA, Lowry SJ, et al. Development of a Caregiver-Reported Experience Measure for Pediatric Hospital-to-Home Transitions. Health Serv Res. 2018;53:3084-3106. doi: 10.1111/1475-6773.12864
Desai AD, Zhou C, Simon TD, Mangione-Smith R, Britto MT. Validation of a parent-reported hospital-to-home transition experience measure. Pediatrics. 2020;145(2):20192150. doi: 10.1542/peds.2019-2150
Anthoine E, Moret L, Regnault A, Sbille V, Hardouin JB. Sample size used to validate a scale: a review of publications on newly-developed patient reported outcomes measures. Health Qual Life Outcomes. 2014;12:176.
Ulus B, Kubilay G. Turkish adaptation of the Pedsql health care parent satisfaction scale. ACU Sağlık Bil Derg. 2012;1(3):44-50.
Beaton D, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine (Phila Pa 1976). 2000;25(24):3186-3191.
Lawshe CH. A quantitative approach to content validity. Pers Psychol. 1975;28(4):563-575. doi: 10.1111/j.1744-6570.1975.tb01393.x
Hu LT, Bentler PM. Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Struct Equ Model. 1999;6(1):1-55. doi: 10.1080/10705519909540118
MacCallum RC, Browne MW, Sugawara HM. Power analysis and determination of sample size for covariance structure modelling. Psychol Methods. 1996;1(2):130-149.
Forrest S, Lewis CA, Shevlin M. Examining the factor structure and differential functioning of the Eysenck personality questionnaire revised - Abbreviated. Pers Individ Dif. 2000;29(3):579-588. doi: 10.1016/S0191-8869(99)00220-2
Hooper D, Coughlan J, Mullen MR. Structural equation modelling: Guidelines for determining model fit. Electron J Bus Res Methods. 2008;6(1):53-60. doi: 10.21427/D79B73
Orcan F. Exploratory and confirmatory factor analysis: Which one to use first? J Meas Eval Educ Psychol. 2018;9(4):414-421. doi: 10.21031/epod.394323
DeVellis RF, Thorpe CT. Scale Development: Theory and Applications. Sage publications; 2021.
Clark LA, Watson D. Constructing validity: Basic issues in objective scale development. Psychol Assess. 1995;7(3):309-319. doi: 10.1037/1040-3590.7.3.309
Tavakol M, Dennick R. Making sense of Cronbach’s alpha. Int J Med Educ. 2011;2:53-55. doi: 10.5116/ijme.4dfb.8dfd
Ravinder EB, Saraswathi AB. Literature review of cronbach alpha coefficient (a) and mcdonald’s omega coefficient (Ω). Eur J Mol Clin Med. 2020;7(6):2943-2949.
Desai AD, Durkin LK, Jacob-Files EA, Mangione-Smith R. Caregiver perceptions of hospital to home transitions according to medical complexity: A qualitative study. Acad Pediatr. 2016;16(2):136-144. doi: 10.1016/j.acap.2015.08.003
Amar-Dolan LG, Horn MH, O’Connell B, et al. This is how hard it is" family experience of hospital-to-home transition with a tracheostomy. Ann Am Thorac Soc. 2020;17(7):860-868. doi: 10.1513/AnnalsATS.201910-780OC
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